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Dowling College         Spring 2006     Dr Christian Perring

 

SSC 6640  Disability: Philosophical, Historical and Social Perspectives

Classroom: KSC 101A

Time: Monday 5:30-7:30 PM

CRN 20303

 

Contact Info:

Email: perringc at dowling.edu  (Put SSC6640 in subject line)

Phone: 631 244-3349

Office Hours: Monday 11:00 AM - 1:00 PM, Monday 4:30-5:30 PM, Wednesday 11:00 AM- 1:00 PM, or by appointment.

 

Required Texts

Albrecht, Gary, et al.  The Handbook of Disability Studies Thousand Oaks: Sage Publications, 2001 [HDS]

Fleischer, Doris Zames and Frieda Zames.  The Disability Rights Movement: From Charity to Confrontation.  Philadelphia: Temple University Press, 2001.

 

Other possible books of particular relevance:

Thomson, R. G. (1997). Extraordinary bodies: Figuring physical disability in American culture and literature. New York: Columbia University Press

Goffman, E.  (1963).  Stigma: Notes on the management of spoiled identity.  Englewood Cliffs, NJ: Prentice-Hall.

Branson, Jan and Don Miller, Damned for Their Difference: The Cultural Construction of Deaf People As Disabled (Gallaudet University Press, 2002).

Groce, Nora Ellen.  Everyone Spoke Sign Language: Hereditary Deafness on Martha's Vineyard.  Cambridge, MA: Harvard University Press, 1985.

Padden, Carol and Tom Humphries, Deaf in America: Voices from a Culture (Harvard University Press, 1988).

Stiker, H. (1999). A history of disability (W. Sayers, Trans.) Ann Arbor: University of Michigan Press.

 

A Note on Language and Etiquette

It is a fundamental assumption of this course that people with disabilities deserve as much respect and have as many rights as the rest of the population.  While participants in the seminar are free to hold and defend any views they please, it will be essential to treat other participants with full respect.  It is important to pay particular attention to language and the phrases we use to refer to groups of people with disabilities, since there has been such a history of stigma in attitudes towards people with disabilities.  One commonly accepted way to show respect is to use "people first" language, so for example rather than using the phrase "the blind," you would refer to "people who are blind."  However, there may be occasions where it is appropriate to use expressions such as "the blind," "the mad," or even "cripples."  For example, when discussing historical attitudes to people with disabilities, one can quote the language.  Furthermore, some disability rights activists refer to themselves using language that has had a derogatory connotation as a way of reclaiming it, or possibly for ironic effect.  In a philosophy class, all approaches and assumptions are up for scrutiny, so you should not feel that you cannot question certain ideas.  As a community of enquiry, it is essential that we explore ideas and tolerate disagreement and discussion about sensitive topics, and in order for this to be possible, we express ourselves in ways that allow this. 

 

Student Learning Outcomes

Students will be better able to

• understand the experiences of disability and how it affects the lives of people.

• explain the history of the treatment of the disabled.

• question whether current policies towards the disabled perpetuate past discrimination.

• evaluate portrayals of disability for their implicit or explicit value judgments.

• examine the success of laws designed to protect the rights of the disabled.

• engage in ethical debate concerning our current policies concerning disability and difference.

• articulate the relations between different approaches to disability, including social, literary, personal, political, philosophical, and ethical.

 

Expectations

·        In addition to being a graduate course supplying 3 credits on your transcript, this is a seminar in which the participants form a community of inquiry.  Thus we have responsibilities to each other. 

·        You will be respectful to everyone in the seminar.

·        You are free to argue for any point of view you choose, but you cannot make ad hominem arguments to any other person in class or on the discussion board.

·        If there are people in the class with special communication needs, we will adapt the seminar to those needs.

·        You are expected to come to class.  You should arrive before 5:30 pm, and class will start promptly.  It will last the full two hours. 

·        If you have to miss a class, you must explain this to me and provide appropriate documentation.

·        To communicate with each other and me by email about matters concerning the class, you should use your Dowling email.  Contact the Dowling Computing Help Desk if you have trouble activating this.

·        You should check you Dowling email at least once a week for class messages, and preferably more often.

·        We will use a discussion board, probably through the Dowling Blackboard facility at blackboard.dowling.edu, so you should make sure you are able to access this.  If you have difficulty, contact the Dowling Computing Help Desk.

·        You will do the required reading.  You should not limit yourself to only the required reading, and I expect students to read other materials relevant to the course.

·        All writing needs to be grammatical and clear, even on the discussion board. 

·        All references in required written work must be cited in APA format.

·        Standards of academic honesty apply to all written work, including submissions to the discussion board.

·        The final paper will be submitted via turnitin.com.

·        I expect students to engage in the readings and participate in the discussion, and to make strenuous efforts to understand the demanding readings.  If you have difficulties understanding the readings or writing a good paper even after making efforts on your own, you should consult with me or form study groups with each other. 

 

Work Requirements.

·        In the first 3 weeks of class, you must read a memoir of disability from the list on the Disability Resources page.  You should write a 1000 word reflection on this, partly summarizing what happens in the book, but also discussing the point of view of the writer, and how it compares with your point of view.  The point of this is to expand your understanding of the experience of being a person with a disability, and consider how you relate to it.  You should post your reflection on the discussion board for the rest of the class to read.  (10%)

·        Presentation: Each student must prepare a 15-minute class presentation along with a handout for the rest of the class summarizing the main themes and conclusions of the presentation.  The presentation must be well prepared and helpful to the rest of the seminar.  It can summarize ideas of others or it can make a case for a particular claim.  You should choose your topic from the list on the schedule.  If you want to create your own topic, you should consult with me. (10%)

·        2 reflection pieces on the readings, posted to the discussion board.  At least 1000 words each.  You must do your first one by March 21, and the second one by May 2.  (10% each)

·        Participation in class and in the discussion board (10%)  (On average, at least one substantial comment in class or post to the discussion board each week.)

·        Final paper, at least 6000 words.  (50%).  Due by May 8. You must submit your own paper topic to me in writing by April 4 for my approval.  (If you want to write a draft and get comments on it, you must get it to me by April 10). 

 

Grading

Assigning grades to students in a course like this is not determined by very precise standards, but it will be important for you to do all the required work in order to get a passing grade.  As a rule of thumb, for this course, A means excellent, B means good, C means satisfactory, D means enough to pass, and F means fail. 

 

Schedule

 

Date

Topic

Required Reading

Presentation Topics

M 1/30 

Introduction

 

 

M 2/6

The History of Attitudes Towards the Disabled.

·        Old ways of thinking: stigmatizing attitudes

·        Eugenics

"An Institutional History of Disability" by David Braddock and Susan Parish, pp 11-68 of HDS.

"'Wheelchair Bound' and 'The Poster Child,'" pp. 1-13 from DRM.

 

 

Histories of treatment of particular groups and disabilities: blindness, deafness, paralysis, mental illness, cognitive impairment.

M 2/13

The Representation of Disability

·        memoirs

·        novels

·        films

·        TV drama

·        documentaries

·        news reporting

·        artwork

·        photography

"Signifying Bodies: Life Writing and Disability Studies" by G. Thomas Couser, pp. 109-117, and "The Politics of Staring: Visual Rhetorics of Disability in Popular Photography,: by Rosemarie Garland-Thomson, pp. 56-76, both in Snyder, S. L., Brueggemann, B. J., & Garland-Thomson, R. (Eds.). (2002). Disability Studies: Enabling the Humanities. New York: The Modern Language Association of America.

Summary and discussion of particular memoirs, novels, movies, or other representations.

M 2/20

 

"The Uneasy Home of Disability in Literature and Film" by David Mitchell and Sharon Snyder, pp. 195-218 of HDS

Summary and discussion of particular memoirs, novels, movies, or other representations.

M 2/27

Stigma, Discrimination and Resistance (2 weeks)

·        language used in describing disability

·        the iconography of disability

·        "people first" language

·        political correctness

 

"The Social Experience of Disability," by Carol Gill, pp. 351-372 of HDS.

"Disability and Community: A Sociological Approach," by Michael Kelly, pp. 396-411 of HDS.

"Advocacy and Political Action," by Sharon Barnatt et al., pp. 430-449 of HDS

Explaining particular groups that fight for the rights of the disabled.

What visual images have been used to depict people with disabilities in stigmatizing ways?

What TV shows have had success in fighting the stigma of disability?

M 3/6

·        the disability rights movement

·        the social theory of disability

·        disability groups on the Internet

"Theorizing Disability," by Gareth Williams, pp. 123-144 of HDS

"Disability Culture: Assimilation or Inclusion," by Colin Barnes and Geoff Mercer, pp. 515-534 of HDS

"Identity Politics, Disability and Culture," by Lennard Davis, pp. 535-544 of HDS

"Making the Difference: Disability, Politics, and Recognition," by Tom Shakespeare and Nick Warren, pp. 546-564 of HDS.

What kinds of groups are active in discussing disability on the Internet?  What sorts of discussions do they have?

Is there a consistent explanation of "people first" language in different sources?  How widespread is it?

M 3/13

The Legal Rights of the Disabled

·        IDEA (Disability Education Act)

·        Americans with Disabilities Act

·        The law in other countries

Chapters 4-7, pp. 49-131 from DRM

Americans with Disabilities Act (Available Online)

"Disability, Human Rights, Law and Policy" by Jerome Bickenbach, pp. 565-584, in HDS.

"Stigma without Impairment: Demedicalizating Disability Discrimination," by David Wasserman, pp. 146-162, in Francis, Leslie Pickering & Anita Silvers (Editors).  Americans with Disabilities: Exploring Implications of the Law for Individuals and Institutions.  New York: Routledge, 2000.

Summarizing important court cases that have tried to use the ADA.

The history of IDEA?

The implementation of special education law in New York state.

M 3/20

Disability as Cultural Difference

·        The Deaf Community

·        Special Olympics

·        Special Education

Chapters 2 and 3, pp. 14-48 and Chapter 12, pp. 200-216 from DRM

"Inclusion/Exclusion: An Analysis of Historical and Cultural Meanings," by Jean-Francois Ravaud and Henri-Jacques Stiker, pp. 490-514, of HDS.

Arguments for treating deafness as difference rather than disability.

The success of "deafness as difference" approaches.

Why do some deaf parents want deaf children?  Case histories.

M 3/27

The Definition of Disability Philosophical and Biological Debates

·        "Social Constructionism"

·        Controversial cases: alcoholism, people of short stature, cognitive differences, obesity

·        Chronic illness as disability

·        Shifting definitions and intolerance of difference

"Disability Definitions, Models, Classification Schemes, and Applications," by Barbara Altman, pp. 97-122, of HDS.

"Philosophical Issues in the Definition and Social Response to Disability," by David Wasserman, pp. 219-251, of HDS.

 

M 4/3

Medicine and Disability

·        Medical Ethics

·        Health Care Professionals

·        Health Care Policy

Chapters 8 and 9, pp. 132-169 of DRM.

"Disability, Bioethics, and Human Rights," by Adrienne Asch, pp. 297-326, in HDS.

"Health Care Professionals and Their Attitudes toward Decisions Affecting Disabled People," by Ian Basenett, pp. 450-467, in HDS.

"The Relationship between Disabled People and Health and Welfare Professionals," by Sally French and John Swain, pp. 734-753, in HDS

 

 

M 4/10

Genetic Testing, Abortion, and In Vitro Fertilization

·        The quest for normal children

·        The ability to eliminate disability

·        Selecting for disabled babies

"The Disability Rights Critique of  Prenatal Genetic Testing: Reflections and Recommendations," by Erik Parens and Adrienne Asch, pp. 3-43, and "Disability, Prenatal Testing, and Selective Abortion," by Bonnie Steinbock, pp. 108-123, and "Why Members of the Disability Community Oppose Prenatal Diagnosis and Selective Abortion," by Marsha Sexton, pp. 147-164

all in Parens, Erik and Adrienne Asch (Editors).  Prenatal Testing and Disability Rights.  Washington, DC:

What training does a genetic counselor get? 

What can one expect when consulting a genetic counselor.

M 4/24

Intellectual Disabilities and Education

·        The relation between cognitive impairment and physical disability

·        Educational Policy

·        Inclusion and Ethics

Chapter 11, pp. 184-199 of DRM.

"Intellectual Disabilities--Quo Vadis?" by Trevor Parmeter, pp. 267-296, in HDS

"Disability, Education, and Inclusion.: Cross Cultural Issues and Dilemmas," by Katherine Seelman, pp. 693-710 in HDS

 

M 5/1

Theorizing Personhood: Who Counts as a Person? (1 week)

·        Cora Diamond, and Inclusive Definitions of Personhood

·        Quality of Life

·        Degrees of Personhood and Profound Disability

Christian Perring, "Degrees of Personhood."  Journal of Medicine and Philosophy (1997) 22(2) pp. 173-97.

Cora Diamond "Eating Meat and Eating People" in The Realistic Spirit: Wittgenstein, Philosophy, and the Mind (Representation and Mind).  MIT Press, 1995.

"Making Quality of Life Judgments," by Peter Singer pp. 106-131, from Rethinking Life and Death: The Collapse of Our Traditional Ethics.  St. Martin's Griffin, 1994.

The controversy over Peter Singer's ideas about the worth of the lives of people with severe disabilities.

M 5/8

Topic to be decided

 

 

 

 

 

 

 

 

 

 

 

Possible other topics:

·        Examining non-Western attitudes and conceptualizations of "disability."

·        Examining different ways to measure the quality of life and comparing the quality of life of the "normal" and the "disabled." 

·        The social role of caregivers, and the lack of support for families.

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                              

Links:

·        Disabilities Resources: A List of Books and Films

·        The Disability Studies website

·        NEH Seminar: 2002: Justice, Equality, and the Challenge of Disability